Help Harry Walk Fund

Another good night sleep for Harry apart from being a little restless between 1.30am and 2.30am but he settled and awoke at 6am not bad considering he had not taken any pain relief the last one being about 8pm the evening before. Today (friday) was a day that i(Dad) had been anxious about for a long time as it was the first time Harry was going to be getting out of bed since the operation today was a day that had been in my thoughts long before we even arrived in St Louis i was so unsure how Harry would be ? How he would feel inside and him not being able to tell us exactly what he is feeling. Well the moment came at 8.30am when the physio turned up her name was Barrie (yeah i know what your thinking) anyway she went over in fine detail how to pick Harry up without hurting him using a teddy to demonstrate then it was time for her to show us with our precious son she rolled him on to his side and with one hand supporting his shoulder and head and the other under his bottom she brought him upright on to the edge of the bed. Nothing prepares you …….. Harry looked like a rag doll barely being able to support his own head he had to really fight to get those neck muscles to work he got upset and looked uncomfortable i felt awful and so did Shane. He gradually seemed to get himself together finding some inner strength from some where deep inside his little body and then he had to lay down. Then it was Mum,s turn to show the physio that she could do it and like a expert she got him up straight and the in to his pushchair again the tears flowed and i bit my lip. We took Harry for a 40 min walk and during the walk we went to the children’s gym and Harry forgot the tears and wanted to get out of the pushchair to explore but he was not allowed so more tears. After the walk it was back to bed and some play time and then sleep he has his second session at 2pm today !